1. Remember Medication: My advice is to keep it in it's original container, especially if you're flying. I got the blessing from my doc to go off my meds right before my trip (yay). However, I also made sure to bring over the counter pain medication. Aleve is my go-to when I'm feeling achy.
2. The Wide Brimmed Hat: I packed a cute wide brimmed hat to shield myself from the rays, but I ended wearing my baseball cap to the parks.
3. Sunblock: We all need SPF. I made sure to get a least a SPF if 45 (researchers have proven the efficacy if a higher SPF doesn't change after 45) and makes sure it is water resistant.
4. Ask the Doctor: Ask your doctor about any extra precautions you may need to take that you didn't think of.
While on Vacay :
5. Comfortable Walking Shoes: Nothing like a small leg and back flare caused by shoes reminiscent of walking on concrete.
6. Limit Sun Exposure: I play in the sun in spurts and relax in the shade. I also try to avoid peak hours. We went to both Disney and Universal in the evening when it was cooler and less sun.
7. Water: We bought a case of mini bottled waters and brought a couple of them and a few snacks with us to the park.
8. Rest Up: Unexplained fatigue comes with having lupus. You may tire before the rest of the crew, but that's the body's way of telling you to slow down. Being in the sun can be especially draining. I'm no stranger to naps and have separated from the group to sleep and build my energy back up on more than one occasion. Don't be ashamed, catch those midday zzzz's.
When You're Back Home:
1.Ease Into Your Routine: This is something I still need to work on. I hit the ground running when I got back and by end of that week, fell sick. Sore throat, fever, aches and pains, you name it. I missed two and a half days of work because of it. Do as I say, not as I do.
P.S. I'm feeling MUCH better today!!